Tuesday, December 8, 2009

My Angels


Meet the Grandchildren

 Devon on Hippie Day, and just being his Cool Self

When Devon Jeremiah (Jeremiah means "God will raise up; God will set free) was 4 months old he developed a painful knot in his leg. Over the next two days, it tripled in size. His local pediatrician diagnosed him with sarcoma and sent him to St. Jude's Children's Hospital in Memphis, TN (WONDERFUL, wonderful place). He was diagnosed with sarcoma there, as well.  (The absolute worst day of my life was when my daughter called me from Memphis to tell me that the doctors had diagnosed cancer there, too.  I had been there with her for the first few days, but had come home to finish the work week out and go back on the weekend.  I was at work, I hated that she was over three hours away from me.   I remember holding it together while she was telling me, promising her that I was on my way.   I remember calling my mom and losing it...even now, I can't type this without crying, knowing that I had a happy ending!) His blood count was very low, and he was given a blood transfusion. They did a biopsy of his knot, and put a chemo port in his little chest. All this was going on over the course of a week or so.... doctors were getting ready to do surgery, and realized, finally, that the child didn't have one cancer cell in his biopsy.

I have to tell you that there had been a LOT of prayer about our situation. I truly do not know if there were originally cancer cells found or not, or if cancer was just the assumption. But, we were back to square one, not knowing what we were dealing with.

The doctors started going back over his medical history (remember he was only 4 months old) and realized that just before the knot formed, he'd been given a shot of Rocephin in his leg, for a 104° fever that wouldn't break. With that information, they figured out that he had a hematoma from the needle sticking into a muscle, not sarcoma, and the origin was no Factor 8 (the clotting factor) in his blood. His diagnosis was changed from sarcoma to hemophilia. The port in his chest was then used to supply him with Factor 8 instead of chemo. He is now a healthy, handsome 7 year old, getting factor when he needs it, for cuts that won’t stop bleeding, or knots and bruises that bleed internally.






Ashton's Cool and Handsome Self

When Ashton came along....very early...(for one day in his life, he weighed a mere 1.15 lbs., about as big as a package of baby wipes) life was rough enough without having the added issue of hemophilia.  He was born with a bleed in his brain which God mercifully cleared up.  He became very sick and lethargic and could not even be fed through a feeding tube because the residual was so bad.  At the tender age of 1 month 2 weeks old, and under three pounds, he started moving and wiggling, and moved himself up onto his knees. He came home after several months in NICU (neonatal intensive care unit).  Almost a month after his extended hospital stay, they went back to the hospital for a visit, and he seized up and stopped breathing.  Thank God they were at the hospital, or he would have died!  A man stood over him for an hour or more manually pumping air into his little body until they got a machine to do it that fit his size.  

He couldn't talk when he should have been able to, so he was given speech therapy.   He is now the most lively, energetic, talkative and healthy little boy in the world. Lucas (his middle name) means giver of light. Well, wouldn't you think so?! He is an inspiration. Never give up! 


Then there was Samara (the name means "Protected by God")…the picture of health and beauty since Day One. She is now three, and our little princess…at least that’s what she tells us..and it's what we believe!



6 comments:

  1. if I remember correctly its the mom that carries the gene for hemophilia but its boys that get it?? Devon and Ashton are handsome young men! amazing about the sarcoma/hematoma and how small Ashton was when he was born. God definitely has his hands on those young men! Samara is such a pretty name, does it mean anything? I remember you "showing" her off when she was born!

    and soon............

    you are way tooooooo young to be a grandmother :)

    betty

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  2. It is the mother who carries the gene but she has to get it from her father. You forgot to mention a few things about Ashton. He was born with a bleed in his brain and that God took it upon himself to clear that up. You also forgot that he became very sick and lethargic and could not even be fed through a feeding tube because the residual was so bad. Then within a day 1 month and 2 weeks old and 2 lbs he started moving and wiggled and moved himself up onto his knees. He came home and it was almost a month after his hospital stay when we went to HSV hospital and he seized up and stopped breathing and thank God we were there or he would have died! A man stood over him for an hour or more manually pumping air into his little body while they got a machine to do it that fit his size. How he couldn't talk and he has speech therapy and now he is the most lively, energetic and talkative, healthy little boy in the world. Lucas (his middle name) means giver of light. Well, wouldn't you think so. He is an inspiration. Never give up!

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  3. Yes, I have no excuse for leaving all that out, except that I was at work and had spent too much time finding pictures....wow, what a story Ashton is!! I did add all of the above to the entry, and Les, you know, I'm just humbled by your story...I love you so much.

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  4. wow, Meg, Ashton truly is a gift from the Lord! I admire all your faith so much as you journeyed with Ashton; he sounds like a fine young man!!! and I wonder how the Lord will use him :)

    betty

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  5. Thank you for the introductions! What an amazing story for both of the boys. God is so good and does indeed work miracles, doesn't He? All 3 of them are sweethearts - do enjoy every single moment with them! I love being a grandmother - it is better than I could ever have imagined! I think you might feel the same way :))

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  6. Goodness and PRAISE GOD! These are such beautiful and blessed boys and little girl! My oldest grandson was about 3 when they found a lump on one of his leg bones and we spent some anxious time waiting for them to figure out what it was. A lot of prayer was said, and it "went away on it's own." There are now a few other problems cropping up (about 5 years later) and they are having to do another bunch of painful tests. He is 9 now and we are again praying...

    We've seen so many miracles in our kids, grandkids, and my nieces and nephew's lives. God is a wonderful, miracle working God. Sometimes it seems as if Satan is attacking constantly but we've kept on praying and every attack has been lived through to the glory of God for we have been able to give testimonies, much as you did, of HIS healing power!

    Grandkids are truly wonderful blessings aren't they!!!

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